Here's a few places for help.
(More added as found)
NORD - National Organization for Rare Disorders, Inc.
to my knowledge, NORD only helps with two
accepted treatments for Narcolepsy.
2.) Xyrem (Currently only to those in a approved study)
* NORD can
refer to another agency for help on xyrem.
They don't at their organization directly help to the
best of my knowledge.
- Jan 12, 2000
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